Kyra - the mystery continues

So, today was Kyra's appt with the neuro surgeon @ Children's Hospital. What a long, exhausting day!

It turns out, after actually viewing the MRIs, he no longer agrees with her ped neuro. Apparently, they'd discussed her case on the phone, but he hadn't seen her MRIs until this morning before our appt.

He said after looking over the reg MRI and her flow study, that the blockage was very minuscule in comparison to what he feels is the problem. He said the blockage is so minor, in his opinion, that it isn't worth pursuing surgery or meds as he feels neither will help as the blockage isn't the problem any way.

What he saw that concerned him was 'major inflammation' at C1&C2. He said the reason this 'gets him excited' is because any time you are talking that kind of inflammation in that area, you are risking bones and joints moving that aren't supposed to. That's a serious problem :( So, he sent us for a set of XRays, that thank GOD didn't show any unwelcome movements at this point, but she has a CT scan to confirm. He also sent us to the lab for blood work. He says he feels pretty sure she has arthritis (huh??) and she is scheduled to see a rheumatologist @ Children's day after tomorrow (CT same day).

Weird stuff. Weird, weird stuff.

Here is a little C1/C2/rheumatoid arthritis info

http://www.arthritis-treatment-and-r...neck-pain.html

http://www.neurosurgerytoday.org/wha...ervous_sys.asp