Kyra's new collar & a couple of H

You can tell by the pictures how one of her shoulders is lower than the other & how crooked her neck still is :sigh







And, this is H lovin Momma's MP3 player during our long ride :giggle

Cervical Collar for Ky

Talked to the PA at the PNS' office, they want her fitted for a cervical collar. They are hoping this will provide stability and help avoid any spinal cord compression.

She has a field trip in StL tomorrow, so we will go to the ortho then and have it taken care of. Unfortunately, this means she'll miss her field trip but it can't be helped.

another update on KY

Finally heard back from the PNS' office. He wants to see her to check on the mass and see if it's grown. The first available appt they had to get her in for all of her testing - MRI, Xray, etc. is July 8th in the evening, and then we'll see the PNS the next morning so he'll have her results.

We're trying to think positively and hope for the best, which would be that the mass hasn't grown and turns out to be benign. At any rate, it sounds like it's going to have to be removed since it's against her spine and now causing more problems - but that is much better than the alternatives.

She had to go to the nurse today and cried off and on all evening about her neck hurting. Hoping she can hang in there until the 8th!

Kyra

Basically, after Ky's last appt with the ped. neuro surg. we were told to look for additional symptoms that might mean the mass against Ky's cervical spine was enlarging and/or causing problems.

At the end of last week, she came home from school one afternoon and said she didn't feel well and asked to lay on my bed. She went to sleep about 4pm and we were unable to wake her for dinner. When Kev picked her up and carried her to her bed late that night, she still didn't wake and she slept through the night until 6:30 the next morning. We didn't think much of it then, just figured school had worn her out, she was coming down with something, etc.

Yesterday she came home from school and started holding her neck and crying and saying it hurt. I waited a little bit and then decided to call the PNS (ped neurosurgeon) - got the after hours answering machine even though it was 15min before closing I left them a message and told them what was going on. She whined off and on and played just a little. At dinner she would only eat a couple of bites of mac n cheese (which is unusual for her) and then wanted to lay on my bed, she went right to sleep and slept for several hours but then was up off and on all night last night complaining of her neck hurting

We're just worried about WHAT this soft tissue mass is and her new symptoms. They told us at her last appt that it was pressing up against her spine, but there was no compression yet but she was not to do certain movements and exercises that might cause that to happen.

So, yeah, I'm just a little worried right now.

I did call back again this morning and was told PNS is in surgery all morning, but I will get a call back this afternoon.