Kyra

Basically, after Ky's last appt with the ped. neuro surg. we were told to look for additional symptoms that might mean the mass against Ky's cervical spine was enlarging and/or causing problems.

At the end of last week, she came home from school one afternoon and said she didn't feel well and asked to lay on my bed. She went to sleep about 4pm and we were unable to wake her for dinner. When Kev picked her up and carried her to her bed late that night, she still didn't wake and she slept through the night until 6:30 the next morning. We didn't think much of it then, just figured school had worn her out, she was coming down with something, etc.

Yesterday she came home from school and started holding her neck and crying and saying it hurt. I waited a little bit and then decided to call the PNS (ped neurosurgeon) - got the after hours answering machine even though it was 15min before closing I left them a message and told them what was going on. She whined off and on and played just a little. At dinner she would only eat a couple of bites of mac n cheese (which is unusual for her) and then wanted to lay on my bed, she went right to sleep and slept for several hours but then was up off and on all night last night complaining of her neck hurting

We're just worried about WHAT this soft tissue mass is and her new symptoms. They told us at her last appt that it was pressing up against her spine, but there was no compression yet but she was not to do certain movements and exercises that might cause that to happen.

So, yeah, I'm just a little worried right now.

I did call back again this morning and was told PNS is in surgery all morning, but I will get a call back this afternoon.