Kyra & Livy updates

Well, apparently *I* made a mistake yesterday. Crazy, right? Kevin could hardly believe it either. The perfect woman who knows everything was wrong and made a mistake *gasp* HAHA!!! (We are talking about me here, not Kevin :giggle) Anyway, some how between my phone pad and my online calendar, Olivia's post-op appt changed from May 29th, to May 19th. Uh-huh. So, guess who made the 3hr(+) trip to StL only to be told their daughter didn't have an appt? EESH!! Thank goodness, a nurse was able to see her, but he called Dr. J & she still wants us to come back the 29th. She wants to see for herself how she is healing and also go over the pathology report with us. The nurse thought everything looked ok and her stitches will be dissolved soon. Still no PE or physical activity until after the 29th - she is NOT happy about that!

However, the day wasn't in vain. Ky's rheumatologist & neurologist had recc she see one of the ophthalmologists at Children's to have her eyes checked out. When I called to make the appt, I requested the 19th, so it'd be the same day as Olivia's appt! LOL. At least we got that in ;)

They did the preliminary tests & then decided to dilate her eyes. We waited 30min for the drops to work and then went back in for more exams. He said at this time she doesn't need glasses, but with the way her eyes look, her current prescription, & the fact she has JRA (oh yeah, I haven't told you about that yet - it's coming LOL) he predicts she'll most likely need glasses by 1st-2nd grade. I wasn't too surprised by that, seeing how near sighted both Kevin and I are. Otherwise, her eyes look very healthy, but because of the JRA and the problems that can cause with the eyes, he wants to see her back in 6mths. Also, I asked him about her right eye (it droops and twitches when she eats - it has since she hit my mom's coffee table when she was 2, but it's gotten a bit worse). He said that it's called Marcus Gunn Syndrome & basically, just something she'll have to live with and we'll hope it doesn't get worse.

Ok, so back to the JRA (juvenile rheumatoid arthritis). While we were at Children's, I called Ky's rheumatology nurse to ask about Wed's CT result and to also let her know that while DrW discussed starting her on meds, he didn't actually do so. She said the CT results were back and she could read me some of what was on it that she understood, but she couldn't give me a full report or tell me what the plan of action would be. Before DrW contacts me, he writes up a full report for Ky's other dr's and he's currently behind on that. She said it would be Thurs or Fri before we hear from him. She said that the CT confirmed it's JRA and that her C1/C2 have already fused together and others are trying to fuse. She said something about a spot showing up, but she wasn't sure what that meant. She also said that her chart stated he'd started her on naproxen, but he didn't. So, we're just waiting for him to call us and then we'll go from there.