Health updates

Miss Kyra visited her pediatric neurologist at St Louis Childrens last month and things are looking great!  The mass is still there, but a bit smaller and is no longer causing her spinal cord to curve out!!  The mass does make her more prone to headaches and neck injuries, so there are certain things we try to avoid that can cause flare ups, but otherwise things look great!

Miss Olivia visited her pediatric cardiologist at St Louis Childrens this month and we're facing the possibility of another surgery.  However, it is a very minor one.  Because she's so active it sounds like her body didn't fully form a scar tissue layer around her pacemaker.  She's having some stabbing pains that are believed to be pulling on the scar tissue she does have and this is allowing the pacemaker to shift and move.  We're attempting to cut her activities down in hopes that the scar tissue will form, if it does not, they'll have to go back in and 'tack' the pacemaker down so that it stays in one place.

Mr. Harrison had his left ear tube removed on Aug 9th and has already had another silent ear infection and partial perforation.  We're waiting to hear from his ENT to see what the next step is, but I'm sure we'll end up replacing the tube.

Everyone else is healthy and well and we are SO thankful for that!!