Poor Kyra

At her last appt with the neuro surgeon at Children's in August, he told us we could slowly start weaning her out of the collar and to call if she had any problems.

I had to call her neuro surgeon. She has to go back to wearing the collar 24/7 again :(

We'd gotten her to the point she was out of it from about 3pm-7:30am, but she started having bad headaches in the evening. The first couple of nights I hoped it was just a fluke, but last night she asked if we could put the collar back on so her head would stop hurting :(

So, we're starting over again. He wants her in it 24/7 for 2wks and then we'll start all over again with the gradual weaning and hope next time goes better.

I wish her appt would hurry up and get here, so we knew what the mass was doing. She goes back for another MRI at the end of Oct.